Time for Cinderella to go to the ball: Reflections on the right to freedom of scientific research

Pages258-286
Citation(2021) 138 SALJ 258
Published date19 May 2021
Date19 May 2021
AuthorThaldar, D.W.
DOIhttps://doi.org/10.47348/SALJ/v138/i2a2
258
TIME FOR CINDERELLA TO GO TO THE
BALL: REFLECTIONS ON THE RIGHT TO
FREEDOM OF SCIENTIFIC RESEARCH*
DONRICH W THALDAR
Associate Professor, University of KwaZulu-Natal
MICHAELA STEYTLER
Master’s Fellow, University of KwaZulu-Natal
Despite the fac t that the Constitution explic itly protects the right to freedom o f scientic
research, this right features neither in the preamble to any legislation, nor in any
reported ca se law. If the right to freedom of scie ntic research remain s in obscurity, South
Africa could slip into totalitarian control of the scientic enterprise, to the detriment
not only of scientists, but also of society in general. The right to freedom of scientic
research should play a more central role in policy-making. This is not only because it
is an enumerated constitutional right, but also because it is important in its ow n right,
as it serves purposes that are at the core of our constitutional value-system: promoting
individual autonomy, facilitating the search for truth, and supporting democracy.
The right to f reedom of scientic resea rch is unique in protecting n ot only the exchange of
scientic th oughts and information, but al so in particular the physical a ctivities entailed
by scientic research, such as performing experiments. The notion that government
should somehow seek to regulate every new scientic development is erroneous, as
freedom should be the default position in science-related policy, and should only be
limited by regulation if, and to the extent that, it is constitutionally justied.
Human rights – right to freedom of scientic research – expression –
dig nity – li mitation
I INTRODUCTION
There are good reasons to believe that the right to freedom of scientic
research1 is t he proverbial stepdaught er of the South Africa n Bill of Right s.2
First, considering that legislation often mentions the constitutional rights
that it intends t o promote in its preamble, one might e xpect that legisla tion
* This article is partially based on research done for the second author’s LLM
degree und er supervision of the  rst author. The authors w ish to acknowledge the
support of the Nat ional Research Foundation (Grant 116275) and the Universit y
of KwaZulu-Natal (African Health Research Flagship Grant). The authors also
wish to th ank Stephen Peté for his hel pful comments on t his article. A ll remain ing
errors rem ain the authors alone.
BLC LLB MPPS (Pretoria) PhD (Cape Town) PGDip (Oxon).
LLB (KwaZulu-Nat al).
1 Constitution of the Republic of South Africa, 1996 (‘the Constitution’),
s 16(1)(d).
2 Donrich W Jordaan ‘Science versus anti-science: The law on pre-embryo
experimentat ion’ (2007) 124 SALJ 618. The author ha s since changed hi s surname
to Tha ldar.
https://doi.org/10.47348/SALJ/v138/i2a2
(2021) 138 SALJ 258
© Juta and Company (Pty) Ltd
THE RIGH T TO FREEDOM OF SCIE NTIFIC RESE ARCH 259
https://doi.org/10.47348/SALJ/v138/i2a2
that relates to science would mention freedom of scientic research. How
many Acts are there that relate to science, one may ask? In fact, there are
plenty of them. According to its website, the Department of Science and
Innovation administers 22 Acts.3 Besides these Acts, there are also Acts
that are administered by other government departments, which contain
provisions that relate directly to scientic research. Examples are the
Patents Act 57 of 1978,4 the National Health Act 61 of 2003,5 and the
Protection of Personal Inform ation Act 4 of 2013.6 Remarkably, however,
apart from the Constitution itself, not a single Act of Parliament contains
the phrase ‘freedom of scientic research’.7
Furthermore, has freedom of scientic research ever been analysed by
any of our court s? Remark ably, again, the answer i s no.8 One can spec ulate
as to the reason. It may be because scientists have not felt that the right
has been infringed upon. Or it may be due to a reluctance on behalf of
scientists to exert their rights — or even an ignorance of their rights. The
legal prac titioners who advise scient ic bodies and indiv idual scientists may
be contributing to keeping freedom of scientic research mentally locked
away in obscur ity. This situation is pos sibly self-perpetuat ing: as long as no-
one relies on the ri ght to freedom of scientic res earch, the right wil l never
be analysed and applied by a cour t, and no-one will have the condence to
be the rst to venture onto terra incognita by relying on the right.
The global COVID-19 pandemic, and in particular the accusations
again st the Chinese governme nt of exercising censure ag ainst its scienti sts,9
vividly illustrates the relevance and importance of freedom of scientic
research. Clearly, freedom of scientic research can save lives. But, the
relevance of the right to freedom of scientic research is not restricted
to the current global healthcare crisis. Whenever science-related policy
3 Department of Science and Technology website available at https://www.dst.
gov.za, accessed on 13 July 2020.
4 Scientic research can constitute infringements on patents (ss 65–71).
Accordingly, although patenting is on the one hand an incentive for conducting
scientic r esearch, on the other hand it a lso acts as a constr aint on the freedom of
scientic research.
5 For example, r esearch on human embr yos is limited i n various ways (s 57(4));
research involving human subjects is made subject to ethics committee approval
(ss 71–3).
6 The processing of in formation for the purpose of research prov ides an ex cep-
tion to cert ain general prohibit ions on the processing of i nformation (e g ss 18(4)(f),
27(1)(d), 32(5)(b)).
7 According to a search performed on Jutastat, 27 April 202 0.
8 According to a search performed on Jutastat and on SAFLII, 27 Apr il 2020.
9 King-wa Fu & Yuner Zhu ‘Did the world overlook the media’s early
warning of COVID-19?’ 2020 Journal of Risk Research 1; Vigjilenca Abazi ‘Truth
distancing? Whistleblowing as remedy to censorship during COVID-19’ (2020)
11 European Journal of Risk Regulation 375; Heidi J Larson ‘A lack of information
can become misinformation’ (2020) 580 Nature 306.
© Juta and Company (Pty) Ltd

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